COMING SOON: 'Enhancing wellbeing and independence for young people with profound and multiple learning difficulties: Lives Lived Well.' (Routledge, 2021)
'Inclusion is Dead; Long Live Inclusion'. https://www.routledge.com/Inclusion-is-Dead-Long-Live-Inclusion/Imray-Colley/p/book/9781138241596
Personalised Learning for Young People with Profound and Multiple Learning Difficulties published by Jessica Kingsley Publishers on June 28th 2013. Order a copy on Amazon or via Jessica Kingsley Publishers Ltd.
During our lives, we all, more or less, create our own narrative. The story of our lives. It's an unfinished story, but a story nevertheless, with many unpredictable twists and turns. Many joys and sorrows. Many successes and failures.
Young people with PMLD don't often get the chance to do that. For practical reasons, they tend to be 'done to'. They are defined, analysed, restricted, contained, prescribed, followed, and led.
This book accepts the inevitability of much of that, but also tries to find ways in which these young people can be helped to create and define their own lives.
It's about starting from the point of view of seeing them AS THEY ARE, and not as we expect, or have been told they are. That's the least we can do for them.
In particular, this book is about educating people with PMLD from about age 14 onwards. An age when behaviour, size and emotional development combine to make the appliance of a more traditional curriculum even more difficult.
The quiet repetitive cough. The neat line of paper clips. The twitch of the eyes. The shake of the head. The sniff. The small contortion of the mouth. The unnecessary second and third touch. The slavish dedication to a thought in the face of overwhelming evidence to the contrary. The inability to stop behaving in a certain way no matter how negative or destructive. Less obviously defined as OCD, but for the sufferer just as painful. These ritualistic behaviours which usually go unnoticed, but left untreated become the background to a whole life. A barrier between the sufferer and the world.
This book is for and about them: the thousands of people who suffer less openly. The victims whose silent rituals cannot always be seen.